The Capacity Code: Stamina, Mana, and the 50-Hour Siege
The System Check We are officially encroaching on the 27th anniversary of the day my life hit a permanent “Game Over” screen and forced me to restart in Hard Mode. Since July 1, 1999,...
The System Check We are officially encroaching on the 27th anniversary of the day my life hit a permanent “Game Over” screen and forced me to restart in Hard Mode. Since July 1, 1999,...
I am still here. I am not exactly “kicking”—considering my left knee and right shoulder have filed a formal grievance against the State of Delaware—but I am breathing. When I last wrote on January...
I started this post days ago. But in the world of chronic illness, the “siege” doesn’t just steal your health; it steals your time. I spent my week in a state of dual recovery....
It turns out that when the fog of a 26-year headache starts to lift, you don’t just sit around—you renovate a kitchen and write a novel. This past Friday, I made the trek back...
Thursday, January 8th, was a lesson in the Protocol of Privilege. I stood at the pharmacy counter, a white woman with a 26-year headache, finding out that my survival suddenly cost 90% less than...
I am writing this through a haze of physical agony. My neck is locked, my shoulders are on fire, and my head is pounding with a spike that no amount of Ubrelvy can touch....
I always wear a mask, but nobody sees it. It’s not a physical thing, of course, but the performance I put on every time I have to talk to someone on the phone, respond...
Why Early Holiday Commercialism Feels Overwhelming (and Harmful) I hate Christmas. It’s not the idea of goodwill or reflection, but the relentless, commercialized machine that turns the entire end of the year into a...
It has been 25 days since I took the first dose of Emgality. If you thought the fight for my head was intense, buckle up. For the past four weeks, my body has hosted...
The $130 Decision and Why the Spike Never Hit The weather in Delaware has been absolutely craptastic —a miserable combination of cold, wind, and gloom —setting the perfect stage for a migraine spike. Right...